How to Talk to Kids About Hospice: A Social Worker’s Guide for Families

Navigators

6 minutes

Aug 18, 2025

Key Takeaways

  • Hospice care means comfort and dignity - not “giving up.”

  • Children need clear, honest language: not euphemisms.

  • Emotional expression through talking, drawing, or play is healthy.

  • Routine, memory-making, and inclusion ease fear and confusion.

  • Resources like Sesame Street, NHPCO, and Compassionate Friends can help.

Explaining hospice care to children and teens is never easy. As a geriatric social worker with over 25 years of experience, I’ve seen how important these conversations can be in helping families stay emotionally connected. Kids feel the changes around them - even if they don’t fully understand them. By using honest, age-appropriate language, caregivers can help young family members process grief, ask questions, and feel included during a difficult time.

Your dedicated Healthcare Navigator

Your dedicated Healthcare Navigator

Advocates are experts in navigating healthcare, including nurses, care coordinators, and community health workers, who have helped thousands of patients manage their healthcare needs.

Advocates are experts in navigating healthcare, including nurses, care coordinators, and community health workers, who have helped thousands of patients manage their healthcare needs.

Advocates are experts in navigating healthcare, including nurses, care coordinators, and community health workers, who have helped thousands of patients manage their healthcare needs.

Understanding Hospice in Simple Terms

Hospice isn’t about stopping care - it’s about providing comfort, support, and dignity at the end of life. According to the National Hospice and Palliative Care Organization, hospice focuses on pain relief, emotional and spiritual care, and living fully for as long as possible.

Children take cues from the adults around them. When you speak about hospice in a calm, compassionate tone, they’ll begin to feel more secure. As pediatric grief expert Dr. Joanne Cacciatore reminds us, kids are highly perceptive - avoiding the topic only increases fear and confusion.

Start the Conversation Based on What They Know

Every child processes grief differently. Ask what they already know or suspect. Keep your explanations age-appropriate and avoid misleading euphemisms like “Grandma is going to sleep.”

  • Young Children: “Hospice helps Grandma feel comfortable when her body is very tired and sick.”

  • School-Age Kids: Explain how nurses help at home or in a facility and that it means Grandma is nearing the end of her life.

  • Teens: Share more detailed information if they ask, including that hospice honors a person’s wishes and supports the whole family.

Let them know it's okay to be sad, confused, or even angry - and that all feelings are welcome.

Support Emotional Expression

Children may not talk about their grief in words. That’s okay. Watch for how they express themselves in other ways:

  • Drawing

  • Playing with dolls or toys

  • Writing or journaling

  • Sitting quietly

Create space for expression and let them guide the pace. The Compassionate Friends group encourages families to offer non-judgmental listening and provide reassurance that their emotions are normal.

Check in regularly. Grief can come and go, and understanding deepens over time.

Your dedicated Patient Advocate

Your dedicated Patient Advocate

Advocates are experts in navigating healthcare, including nurses, care coordinators, and community health workers, who have helped thousands of patients manage their healthcare needs.

Advocates are experts in navigating healthcare, including nurses, care coordinators, and community health workers, who have helped thousands of patients manage their healthcare needs.

Advocates are experts in navigating healthcare, including nurses, care coordinators, and community health workers, who have helped thousands of patients manage their healthcare needs.

Phone: (713) 766-1675

Fax: (713) 583-4402

support@aviatorcare.com

Phone: (713) 766-1675

Fax: (713) 583-4402

support@aviatorcare.com

Phone: (713) 766-1675

Fax: (713) 583-4402

support@aviatorcare.com