How to Talk to Kids About Hospice: A Social Worker’s Guide for Families

Navigators

6 minutes

Aug 22, 2025

Key Takeaways

  • Hospice care means comfort and dignity - not “giving up.”

  • Children need clear, honest language: not euphemisms.

  • Emotional expression through talking, drawing, or play is healthy.

  • Routine, memory-making, and inclusion ease fear and confusion.

  • Resources like Sesame Street, NHPCO, and Compassionate Friends can help.

Explaining hospice care to children and teens is never easy. As a geriatric social worker with over 25 years of experience, I’ve seen how important these conversations can be in helping families stay emotionally connected. Kids feel the changes around them - even if they don’t fully understand them. By using honest, age-appropriate language, caregivers can help young family members process grief, ask questions, and feel included during a difficult time.

Your dedicated Healthcare Navigator

Your dedicated Healthcare Navigator

Advocates are experts in navigating healthcare, including nurses, care coordinators, and community health workers, who have helped thousands of patients manage their healthcare needs.

Advocates are experts in navigating healthcare, including nurses, care coordinators, and community health workers, who have helped thousands of patients manage their healthcare needs.

Advocates are experts in navigating healthcare, including nurses, care coordinators, and community health workers, who have helped thousands of patients manage their healthcare needs.

Understanding Hospice in Simple Terms

Hospice isn’t about stopping care - it’s about providing comfort, support, and dignity at the end of life. According to the National Hospice and Palliative Care Organization, hospice focuses on pain relief, emotional and spiritual care, and living fully for as long as possible.

Children take cues from the adults around them. When you speak about hospice in a calm, compassionate tone, they’ll begin to feel more secure. As pediatric grief expert Dr. Joanne Cacciatore reminds us, kids are highly perceptive - avoiding the topic only increases fear and confusion.

Start the Conversation Based on What They Know

Every child processes grief differently. Ask what they already know or suspect. Keep your explanations age-appropriate and avoid misleading euphemisms like “Grandma is going to sleep.”

  • Young Children: “Hospice helps Grandma feel comfortable when her body is very tired and sick.”

  • School-Age Kids: Explain how nurses help at home or in a facility and that it means Grandma is nearing the end of her life.

  • Teens: Share more detailed information if they ask, including that hospice honors a person’s wishes and supports the whole family.

Let them know it's okay to be sad, confused, or even angry - and that all feelings are welcome.

Support Emotional Expression

Children may not talk about their grief in words. That’s okay. Watch for how they express themselves in other ways:

  • Drawing

  • Playing with dolls or toys

  • Writing or journaling

  • Sitting quietly

Create space for expression and let them guide the pace. The Compassionate Friends group encourages families to offer non-judgmental listening and provide reassurance that their emotions are normal.

Check in regularly. Grief can come and go, and understanding deepens over time.

Conclusion

Talking to grandchildren about hospice doesn’t have to be overwhelming. When you approach the conversation with honesty and warmth, you create a space for resilience and connection. Children don’t need all the answers, they just need your presence and permission to ask questions.

This chapter, though difficult, can be filled with deep love and learning. As Dr. Cacciatore says, “Open conversations about death help children feel less alone and more equipped to cope.” You don’t have to do it alone: there are professionals, tools, and communities to support you every step of the way.

Your dedicated Patient Advocate

Your dedicated Patient Advocate

Advocates are experts in navigating healthcare, including nurses, care coordinators, and community health workers, who have helped thousands of patients manage their healthcare needs.

Advocates are experts in navigating healthcare, including nurses, care coordinators, and community health workers, who have helped thousands of patients manage their healthcare needs.

Advocates are experts in navigating healthcare, including nurses, care coordinators, and community health workers, who have helped thousands of patients manage their healthcare needs.

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We are on a mission to give patients the care they deserve by making it easy to navigate the healthcare system.

Contact Us

Phone: (281) 694-1178

Fax: (713) 583-4402

Email: support@aviatorcare.com

Oxbow Health Inc. is a patient management platform that provides administrative and operational support to physicians and practitioners employed by Aviator Medical Group PA ("Aviator Health"), who deliver care through a telehealth platform. Oxbow Health Inc. does not provide medical or pharmacy services, employ healthcare providers, or influence clinical decision-making. The information on this website is for informational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. If you have questions or concerns about your health, please consult a healthcare professional. This site is an advertisement for telehealth services.

Our Mission

We are on a mission to give patients the care they deserve by making it easy to navigate the healthcare system.

Contact Us

Phone: (281) 694-1178

Fax: (713) 583-4402

Email: support@aviatorcare.com

Oxbow Health Inc. is a patient management platform that provides administrative and operational support to physicians and practitioners employed by Aviator Medical Group PA ("Aviator Health"), who deliver care through a telehealth platform. Oxbow Health Inc. does not provide medical or pharmacy services, employ healthcare providers, or influence clinical decision-making. The information on this website is for informational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. If you have questions or concerns about your health, please consult a healthcare professional. This site is an advertisement for telehealth services.

Our Mission

We are on a mission to give patients the care they deserve by making it easy to navigate the healthcare system.

Contact Us

Phone: (281) 694-1178

Fax: (713) 583-4402

Email: support@aviatorcare.com

Oxbow Health Inc. is a patient management platform that provides administrative and operational support to physicians and practitioners employed by Aviator Medical Group PA ("Aviator Health"), who deliver care through a telehealth platform. Oxbow Health Inc. does not provide medical or pharmacy services, employ healthcare providers, or influence clinical decision-making. The information on this website is for informational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. If you have questions or concerns about your health, please consult a healthcare professional. This site is an advertisement for telehealth services.